“Yesterday was a scary but validating day. I had endometriosis excision surgery. The amazing Dr. Seckin, Dr. Chu, and their team removed 21 endometrial adhesions that have caused debilitating pain, nausea, migraines, and more over the past three and a half years.”
If you didn’t know, endometriosis is a disease in which tissue similar to the lining of the uterus grows outside the uterus. The endometrial tissue had spread extensively throughout her body, affecting her ovaries, bowels, intestines, and more.
Her left ovary had even become distorted and fused to the tube due to the relentless nature of endometriosis — which she likened to “having gum stuck in your body.”
The muscles in her pelvis were in a constant state of tension as they tried to expel the endometrial tissue from places it shouldn’t be. This led to excruciating pain and the formation of more scar tissue.
She also opened up by saying her pain was undeniably real and that she wasn’t exaggerating in any way:
“My extreme pain from the endo is what caused me to lose weight — not an eating disorder, or IBS, or a reaction to gluten, dairy, or caffeine. The migraines were not stress or anxiety-induced. It was pain, and my body reacting to the Endo.”
Lily shared how lucky she felt to be diagnosed early — because many people live with this pain for over ten years before getting a proper diagnosis. They’re often told it’s in their head or that they’re overreacting.
She’s immensely thankful to Bindi Irwin for sharing her endometriosis journey on Instagram in March, and for their encouraging meeting at the Steve Irwin Gala in May.
That experience led Lily to seek answers. After consulting multiple doctors in Los Angeles — one of whom even recommended drastic measures like inducing perimenopause or using antidepressants to manage the pain — she declined and continued to search for real solutions.
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Her immense gratitude extends to Dr. Seckin and his exceptional team. Even though her journey has been daunting, frightening, and isolating, she’s particularly grateful to her mother, who did tireless research and refused to accept inadequate answers.
Support from women like Leslie Moser and Autumn Rodriguez, who shared their stories, helped Lily feel less alone.
The main reason she shared such a personal story is to help other women suffering from endometriosis know they’re not alone. She wrote:
“For those who are reading this and quietly dealing with pain and no answers — please let this be your validation that your pain is real. Keep searching for answers.”
Our hearts go out to Lily, and thankfully, the worst is over. While she is now on her path to recovery, let’s all join in and show some support and prayers for her health in the comments.